My Journey with Lichen Planopilaris

Behold….My New Look!!!!

If you follow my Facebook Page, you know that I had a consultation and chose out a new “hair piece” which was ordered and delivered last week and yesterday I had my appointment to get it altered to match my hair style.

I went to Georgio 635 Salon a few weeks ago and had a consultation with Brenda. She measured my scalp and determined the colour match and we discussed my options. We agreed on a synthetic Topper for my first piece because it’s easier to manage and will fall back into place if it’s synthetic and I wa looking for something low maintenance. The downside is, I have to remember not to cook with it on or ask someone to put things in the oven or take them out as well as being too close to a bonfire or any extreme source of heat.

I called her last week and she placed the order and I went in yesterday afternoon for a desperately needed hair cut and fitting. While she finished up with her other client, she gave me the hair piece to play with and get used to.

We determined the length to cut my hair to match my 8-10 inch hair topper and she gave me a wash and a trim. Then she clipped the topper in place and matched the bangs and softened the edges so it all flowed. It still poofs out a bit at the top but it should mould to my head more and settled after about a week’s worth of wearing.

It’s weird. I am now a woman who wears wigs. I’m having a hard time getting my head wrapped around that now that it’s actually mine and in my possession but it’s still exciting! I can’t wait to go to a concert with my husband in a couple of weeks and be able to wear my hair down instead of in a bun like I normally have to (not really a concert hair style!!). I’m excited to have options again. But it will still take some getting used to. Because I don’t work. Outside of the home, I won’t be wearing it everyday, I can slowly get used to it and practice clipping it to my hair securely enough not to shift but gently enough at the back not to hurt my scalp.

In the end, it’s something, until a few months ago, I never thought I’d purchase or wear in my lifetime but here I am, a woman who wears wigs and a woman who can go out with “her” hair down again. It’s an experience with mixed emotions, but overall it’s positive and exciting!!!

Missed my other posts about hair loss? Here they are!

I’m Losing My Hair

An Update

....because let's face it, Bald may be Beautiful but Patchy Not So Much!

Living with Hair Loss..an Update

let’s face it, Bald may be Beautiful but Patchy…not so much!!!

I thought since September is Alopecia Awareness Month I would write about my hair loss again. I revealed my hair loss in a post in June and had amazing support and feedback…THANK YOU!

Sure Bald is Beautiful but Patchy...not so much!
It’s been 9 months since my diagnosis of Lichen Planopilaris and I’m happy to say I’m in a pretty good place. It feels great to have it out in the open and not feel that I have to hide or be ashamed of my hair loss, although I am still self conscious about it.

When I wrote before, I described how painful it was, but now I feel I have a pretty good concoction of medication helping me manage my condition. Although I still have to wear a hat outside to prevent my scalp from feeling like it’s melting, the regular, every day itching and burning is almost non-existent!!! However, if I miss a couple of days applying my protopic cream, it’s incredibly itchy and sore, I have learned to stay on top of my prescriptions!

I’ve come to terms with wearing a hair piece! The type of piece I need is actually called a “toupee” but I’m not ok with calling it that or wearing a “toupee”, I am not an old man. I will soon be ordering and wearing a “hair piece”. I went to a consultation and got everything I need…colour match, measurements, etc. I’m still doing some research and want to shop around but I’m pretty excited about ordering it and being able to go out and wear my hair down for the first time in over a year! WooHoo!!! Once I have picked and ordered my hair piece I’ll be sure to fill you in with all the steps and details it takes to get a new look! (Stay Tuned!)

I’m still losing my hair, but the hair loss has thankfully slowed down. It can still be challenging to cover up my scalp but with my new options of hair pieces and my growing hat selection, I’m feeling better about things and more confident. When I see the back of my head, I still get taken back…”Is that my head? Where did my beautiful hair go?!” but it’s starting become more familiar and I am accepting that.

Over that past few months I’ve learned a lot. I’ve found a great online support where I am able to learn a lot through others’ experiences. I discovered my grandmother had a form of Alopecia, although it was never talked about. This information helped with the “why is this happening to me” question but saddened me to think my grandma suffered in silence and that it is in fact hereditary and I can pass this down to my children. I have come across great articles regarding hair loss and have had lots of inspiration through hearing other people’s stories.

So again, I write and encourage you to learn about as many rare medical conditions as you can, know what’s happening to your body and learn to recognize when your body is telling you something is wrong. Don’t suffer in silence, seek out support and no matter what, love yourself, because in the end, that’s what makes the difference.